What are the preferences of patients attending a memory clinic for disclosure of Alzheimer's disease? - 25/04/18

Doi : 10.1016/j.neurol.2017.10.016

F. Mahieux ^a,^⁎ , M. Herr ^b,^c,^d, J. Ankri ^a,^b,^c,^d
^a Centre de Gérontologie, Hôpital Sainte Périne, AP-HP, 75016Paris, France
^b Département Hospitalier d’Epidémiologie et de Santé Publique, Hôpital Sainte Périne, AP-HP, 75016 Paris, France
^c INSERM, U1168, VIMA: Aging and Chronic Diseases. Epidemiological and Public Health Approaches, Villejuif 94807, France
^d Université de Versailles St-Quentin-en-Yvelines, UMR-S 1168, 78180 Montigny le Bretonneux, France

^⁎Corresponding author at: Centre de Gérontologie, Hôpital Sainte Périne, 11, rue Chardon-Lagache, 75016 Paris, France.Centre de Gérontologie, Hôpital Sainte Périne11, rue Chardon-LagacheParis75016France

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Abstract

Background/aims

This report shares and discusses the collected personal preferences of patients attending a memory clinic for disclosure of a potential Alzheimer's disease (AD) diagnosis.

Methods

In this prospective study of outpatients attending a single memory clinic over a 6-year period (March 2004–October 2010), doctors collected their patients’ wishes (willingness to be informed, motivation, presence of the family) through a standardized procedure.

Results

Of the 1005 patients questioned throughout the study period—with a final diagnosis of dementia for 480 of them—858 (85.3%) wished to be informed of an AD diagnosis, whereas 72 (7.2%) did not and 75 (7.5%) were not sure. Older age and reduced cognitive functioning were independently associated with a preference to not be informed of a potential AD diagnosis.