The newborn screening educational gap: What prenatal care providers do compared with what is expected - 19/08/11
, Lisa B. Feuchtbaum, DrPH b, Steve Graham, MS c, Judy P. Bolstad, MLIS c, d, George C. Cunningham, MD MPH b
Reprint requests: Lisa A. Faulkner, California State University, East Bay, Department of Public Affairs and Administration, 25800 Carlos Bee Boulevard, Hayward, CA 94542-3040.Abstract |
Objective |
The purpose of this evaluation was to examine prenatal care providers’ knowledge of, attitudes towards, and barriers for providing information about newborn screening and tandem mass spectrometry (MS/MS) screening.
Study design |
We mailed a 12-question survey to 6197 prenatal care providers in California asking about their experiences with newborn and prenatal screening services.
Results |
Although 4/5 of respondents believe newborn screening is very important for their patients, only 1/3 discuss it with all their patients. Over half believe either pediatricians (38%) or hospital staff (36%) will discuss newborn screening. Only 61% of providers give their patients the newborn screening educational booklet, even though California law requires that the booklet be provided to all pregnant women.
Conclusion |
Pregnant women and state professionals rely on prenatal care providers to educate pregnant women about newborn screening; however, many providers do not appear to view it as part of their responsibility. Therefore, the state needs to improve communication with both providers and the public about newborn screening.
Le texte complet de cet article est disponible en PDF.Key words : Newborn screening, MS/MS screening, Prenatal education
Plan
| Partially funded by Maternal and Child Health Bureau of the Health Resources and Services Administration (grant #5 H46 MC00199-03). An earlier version of this work was presented at the Newborn Screening & Genetic Testing Symposium in Atlanta, GA, May 2004, Association of Public Health Laboratories. The bulk of this work was conducted while Lisa A. Faulkner was employed at the Public Health Institute, Oakland, CA and Judy P. Bolstad was employed at the Sequoia Foundation, La Jolla, CA. |
Vol 194 - N° 1
P. 131-137 - janvier 2006 Retour au numéro
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