Measuring quality of life in cerebral palsy children
E. Viehweger a b c 
, S. Robitail b, M.-A. Rohon a d, M. Jacquemier a c, J.-L. Jouve a, G. Bollini a, M.-C. Simeoni b
Bienvenue sur EM-consulte, la référence des professionnels de santé.
Article gratuit.
Connectez-vous pour en bénéficier!
Abstract
Objectives
To identify and describe available health-related quality of life (HRQL) markers in walking paediatric cerebral palsy (CP) patients.
Methods
A Medline literature review (1980-2007); content, application field, and metrologic properties of the scales were specified.
Results
Seventeen scales were identified and classified into three categories: scales developed for cerebral palsy patients or developed for neuromotor pathologies and used mostly in cerebral palsy patients; generic scales developed for the general population; generic scales developed for chronic, non-specific diseases.
Discussion and Conclusion
Documentation of metrologic properties in available HRQL scales is unequal. Information about “sensitivity to change” of the scales is necessary for their use in therapeutic outcome or cohort follow-up studies in CP patients. To include an analysis of the patientʼs opinion is important, thus most of the questionnaires are based on the experimenterʼs experience and synthesis of the literature. CP childrenʼs auto-evaluation of their quality of life using a questionnaire developed based on the patients' and families' opinions, in association with a participation questionnaire, seems to be the most informative method to include in outcome studies.
Keywords : Indicators, Quality of life, Children, Cerebral palsy
Plan
Vol 51 - N° 2
P. 129-137 - mars 2008 Retour au numéro
Article précédent
- Mesure de la qualité de vie chez l'enfant atteint de paralysie cérébrale
- E. Viehweger, S. Robitail, M.-A. Rohon, M. Jacquemier, J.-L. Jouve, G. Bollini, M.-C. Simeoni
- Intérêt d'une mobilisation très précoce après la pose d'une prothèse totale de genou ? Élaboration de recommandations françaises pour la pratique clinique
- J. Paysant, C. Jardin, D. Biau, E. Coudeyre, M. Revel, F. Rannou
Bienvenue sur EM-consulte,
la référence des professionnels de santé.
Plus de 500 000 articles médicaux,
paramédicaux et scientifiques vous attendent.
Déjà abonné à cette revue ?