Transition of patients with inflammatory bowel disease from pediatric to adult care - 03/06/08
, F. Troadec b, D. Heresbach c, L. Siproudhis c, M. Pagenault c, J.-F. Bretagne c
Corresponding author.
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Summary |
Aim |
This study was designed to ascertain the perception of patients (and their parents) followed-up for inflammatory bowel disease (IBD) concerning the transition from pediatric to adult care.
Patients and methods |
Forty-eight youths with IBD who had transited from pediatric to adult care were surveyed. Their age at transition was 17.9±0.9 years. Thirty-four patients (71%) had been referred to a gastroenterologist working in the same hospital and, in 27 cases, after having attended a joint pediatric–adult care visit.
Results |
The response rate was 71%. Twenty-nine patients (85%) and 25 parents (74%) felt they were ready to transit into adult care. Seven patients (22%) and 10 parents (32%) were apprehensive about transition to adult gastroenterology. All patients considered the joint medical visit beneficial in terms of transmitting information from their medical records and 93% considered it beneficial for building confidence in the new gastroenterologist. All parents considered the joint medical visit helpful for building the childrenʼs confidence in their new doctor. At the time of the survey, 29 patients (85%) were continuing to be followed-up by the same gastroenterologist.
Conclusion |
Effective planning, including a joint medical visit, enabled successful, well-coordinated transition to adult medical-care follow-up.
Il testo completo di questo articolo è disponibile in PDF.Résumé |
Objectif |
Évaluer le vécu des patients suivis pour maladie inflammatoire chronique intestinale, ainsi que de leurs parents, lors de la transition entre pédiatrie et médecine d’adultes.
Patients et méthodes |
Quarante-huit enfants devenus adultes et désormais suivis par un gastroentérologue d’adultes ont été inclus. L’âge lors de la transition était de 17,9±0,9 ans. Trente-quatre patients (71 %) ont été confiés aux gastroentérologues du même hôpital, 27 fois au cours d’une consultation commune pédiatre–gastroentérologue.
Résultats |
Le taux de réponses était de 71 %. Vingt-neuf patients (85 %) et 25 parents (74 %) se sentaient prêts pour le passage en médecine d’adultes. Sept patients (22 %) et dix parents (32 %) l’appréhendaient. Tous les patients ont jugé la consultation commune bénéfique pour la connaissance du dossier et dans 93 % des cas bénéfique pour la confiance accordée au nouveau référent. Tous les parents ont jugé la consultation commune bénéfique pour la confiance accordée par leur enfant au nouveau référent. Vingt-neuf patients (85 %) étaient toujours suivis par le même gastroentérologue d’adultes. L’organisation de la transition et en particulier la consultation commune pédiatre–gastroentérologue ont permis d’assurer la poursuite de soins de façon coordonnée et sans rupture.
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Vol 32 - N° 5P1
P. 451-459 - Maggio 2008 Ritorno al numero
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