Impact of childhood psoriasis on parents of affected children - 18/04/17
, Dawn M. Finnie, MPA b, Jennifer J. Schoch, MD c, David T. Eton, PhD bAbstract |
Background |
Childhood diseases, such as atopic dermatitis, have a negative impact on quality of life (QoL) of parents. How pediatric psoriasis affects a parent's QoL is unknown.
Objective |
To explore the impact of childhood psoriasis on the lives of the parents.
Methods |
Semistructured interviews were conducted with 31 parents of children with psoriasis. Narrative data were analyzed and a conceptual framework of the effects of childhood psoriasis on parents was developed.
Results |
All parents reported that their child's psoriasis caused a substantial, negative impact on their own QoL. A conceptual framework showed a negative impact on health and self-care, emotional well-being, family and social function, personal well-being, and life pursuits. Emotional well-being was the most affected domain.
Limitations |
It was not possible to correlate psoriasis severity with parental QoL.
Conclusion |
Childhood psoriasis alters the QoL of parents in multiple ways. Information from this study can be used to develop a QoL instrument to explore treatment and support strategies for families affected by pediatric psoriasis.
Le texte complet de cet article est disponible en PDF.Key words : emotional well-being, family function, health and self-care, parent, personal well-being, psoriasis, quality of life, social function
Abbreviations used : AD, QoL
Plan
| This study was supported by grants from the American Skin Association (the American Skin Association Research Grant) and Dermatology Foundation (the Women's Health Career Development Award). |
|
| Conflict of interest: None. |
Vol 76 - N° 2
P. 286 - février 2017 Retour au numéro
Article précédent
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