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Reprint of: Living well with kidney disease by patient and care-partner empowerment: kidney health for everyone everywhere - 28/03/21

Doi : 10.1016/j.nephro.2021.02.001 
Kamyar Kalantar-Zadeh 1, , Philip Kam-Tao Li 2, , Ekamol Tantisattamo 3, Latha Kumaraswami 4, Vassilios Liakopoulos 5, Siu-Fai Lui 6, Ifeoma Ulasi 7, Sharon Andreoli 8, Alessandro Balducci 9, Sophie Dupuis 10, Tess Harris 11, Anne Hradsky 10, Richard Knight 12, Sajay Kumar 4, Maggie Ng 13, Alice Poidevin 10, Gamal Saadi 14, Allison Tong 15
for the

World Kidney Day Steering Committee16

  Members of the World Kidney Day Steering Committee are Philip Kam Tao Li, Kamyar Kalantar-Zadeh, Sharon Andreoli, Alessandro Balducci, Sophie Dupuis, Latha Kumaraswami, Vassilios Liakopoulos, Siu-Fai Lui, Gamal Saadi, and Ifeoma Ulasi.
Philip Kam Tao Li, Kamyar Kalantar-Zadeh, Sharon Andreoli, Alessandro Balducci, Sophie Dupuis, Latha Kumaraswami, Vassilios Liakopoulos, Siu-Fai Lui, Gamal Saadi, Ifeoma Ulasi

1 International Federation of Kidney Foundation–World Kidney Alliance (IFKF-WKA), Division of Nephrology and Hypertension and Kidney Transplantation, University of California Irvine, Orange, California, USA 
2 Department of Medicine and Therapeutics, Carol & Richard Yu PD Research Centre, Prince of Wales Hospital, Chinese University of Hong Kong, Hong Kong, China 
3 Division of Nephrology, Hypertension and Kidney Transplantation, Department of Medicine, University of California Irvine School of Medicine, Orange, California, USA 
4 Tanker Foundation, Chennai, India 
5 Division of Nephrology and Hypertension, First Department of Internal Medicine, AHEPA Hospital, Aristotle University of Thessaloniki, Thessaloniki, Greece 
6 Hong Kong Kidney Foundation and the International Federation of Kidney Foundations–World Kidney Alliance, Hong Kong, China 
7 Renal Unit, Department of Medicine, College of Medicine, University of Nigeria, Ituku-Ozalla, Enugu, Nigeria 
8 James Whitcomb Riley Hospital for Children, Indiana University School of Medicine, Indianapolis, USA 
9 Italian Kidney Foundation, Rome, Italy 
10 World Kidney Day Office, Brussels, Belgium 
11 Polycystic Kidney Disease Charity and Kidney Patients UK, London, UK 
12 American Association of Kidney Patients, Tampa, Florida, USA 
13 Hong Kong Kidney Foundation, Hong Kong, China 
14 Nephrology Unit, Department of Internal Medicine, Faculty of Medicine, Cairo University, Giza, Egypt 
15 Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia 

*Correspondence: Kamyar Kalantar-Zadeh, Division of Nephrology and Hypertension and Kidney Transplantation, University of California Irvine School of Medicine, Orange, CA.Division of Nephrology and Hypertension and Kidney TransplantationUniversity of California Irvine School of MedicineOrangeCA**Philip Kam-Tao Li, Department of Medicine and Therapeutics, Prince of Wales Hospital, Chinese University of Hong Kong, 30–32 Ngan Shing Street, Shatin, New Territories, Hong Kong, China.Department of Medicine and TherapeuticsPrince of Wales HospitalChinese University of Hong Kong30–32 Ngan Shing StreetShatinNew TerritoriesHong KongChina

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Abstract

Living with chronic kidney disease (CKD) is associated with hardships for patients and their care partners. Empowering patients and their care partners, including family members and friends involved in their care, may help minimize the burden and consequences of CKD-related symptoms to enable increased life participation. There is a need to broaden the focus on living well with kidney disease and reengagement in life, including emphasis on the patient being in control. The World Kidney Day (WKD) Joint Steering Committee has declared 2021 the year of “Living Well with Kidney Disease” in an effort to increase education about and awareness of the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to assess and address areas of life participation in routine care. It could be supported by regulatory agencies as a metric for quality care or to support labeling claims for medicines and devices. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care partners should feel supported to live well through concerted efforts by kidney care communities, including during pandemics. In the overall wellness program for patients with kidney disease, the need for prevention should be reiterated. Early detection with prolonged course of wellness despite kidney disease, after effective secondary and tertiary prevention programs, should be promoted. WKD 2021 continues to call for increased awareness of the importance of preventive measures across populations, professionals, and policy makers, applicable to both developed and developing countries.

Le texte complet de cet article est disponible en PDF.

Keywords : care partner, health policy, low- to middle-income countries, patient empowerment


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 This article has been published in Kidney International and is reprinted concurrently in several journals, including Néphrologie & thérapeutique. The article covers identical concepts and wording, but vary in minor stylistic and spelling changes, detail, and length in keeping with each journal's style. Any of these versions may be used in citing this article. https://doi.org/10.1016/j.kint.2020.11.004.


© 2021  Société francophone de néphrologie, dialyse et transplantation. Publié par Elsevier Masson SAS. Tous droits réservés.
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Vol 17 - N° 2

P. 69-73 - avril 2021 Retour au numéro
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