Dyadic coping strategies and quality of care experience: An original study of patients living with multiple sclerosis and their caregivers - 16/09/23

Doi : 10.1016/j.neurol.2023.02.072

D. Veillard ^a,^b,⁎ , K. Baumstarck ^b, S. Hamonic ^a, A. Ousmen ^a, Z. Hamidou ^b, G. Edan ^c, P. Auquier ^b
^a Public Health and Epidemiology Department, Rennes University Hospital, Rennes, France
^b Public Health: Quality of Life and Chronic Diseases EA3279, Aix-Marseille University, Marseille, France
^c Clinical Neuroscience Centre, CIC-P 1414 INSERM, Rennes University Hospital, Rennes, France

^⁎Corresponding author at: Public Health and Epidemiology Department, Rennes University Hospital, Rennes, France.Public Health and Epidemiology Department, Rennes University HospitalRennesFrance

Sous presse. Épreuves corrigées par l'auteur. Disponible en ligne depuis le Saturday 16 September 2023

Abstract

Background and objective

Multiple sclerosis has a major impact on the lives of patients and their caregivers. Measuring their experience is essential for improving the quality of care. Based on a sample of patient–informal caregiver dyads we examine whether coping strategies they implemented influenced their self-experience of quality of care.

Methods

One hundred and eighty three dyads were involved in this cross-sectional study. Self reported data included experience with the quality of care (Musicare) and coping strategies (Brief Cope) for patients and their caregivers. An actor–partner interdependence model (APIM) analysis was performed to assess the dyadic effects of coping strategies on experience of quality of care.

Results

Positive coping strategies were the most used by patients and caregivers alike. They were associated with a better experience of relationships with healthcare professionals, information about the disease and patient reception at the sites providing care. APIM analyses confirmed most of these results and identified one “partner” effect.