Transition practices of patients with inflammatory bowel disease from pediatric to adult healthcare systems. Results from a national survey - 05/08/26
, Delphine Ley a, b, Frédéric Gottrand a, b, Christine Martinez-Vinson c, Maria Nachury b, d, Léa Mortain e, Stéphanie Coopman aHighlights |
• | Nationwide study describes real-life inflammatory bowel diseases (IBD) transition practices in France. |
• | Less than half of professionals report a formalized pediatric–adult transition. |
• | University hospitals more often implement structured transition programs. |
• | Transition readiness questionnaires remain rarely used in routine practice. |
• | Results highlight the need for adjustments to improve transition practices. |
Abstract |
Background |
Although recommendations for structured transition programs in adolescents with Inflammatory Bowel Diseases (IBD) have been published, few studies have addressed the implementation of transition in real-life settings at a national level.
Objectives |
The aim of this study was to report nationwide transition practices in IBD patients.
Methods and setting |
Data were collected using two anonymous questionnaires sent to pediatric gastroenterologists (PGs) and adult gastroenterologists (AGs) via the newsletters of French societies and groups specializing in adult and pediatric gastroenterology, between December 2023 and March 2024.
Results |
A total of 127 questionnaires were analyzed (PGs: n = 83; AGs: n = 44). Transition was structured for 44% of respondents, more frequently among PGs than AGs (51%vs 32%, p = 0.042). Among those, 52% had a designated transition coordinator and 64% provided an educational program. Structured practices and joint consultations were more common in University Hospitals (UHs) than in General Hospitals (GHs) or private practice (PP), for both PGs (p = 0.002 and p = 0.003, respectively) and AGs (p = 0.008 and p < 0.001, respectively). Although the prerequisites expected of patients before transition differed between PGs and AGs, patient adherence was considered essential by 91% of respondents. Among PGs, transfer occurred mainly after the age of 17 years (91%). For AGs, 66% considered 17–18 years as the optimal age for transfer, with no significant difference across practice settings.
Conclusion |
While some structured processes are in place, broader efforts are needed to enhance IBD transition practices nationwide.
Le texte complet de cet article est disponible en PDF.Keywords : Pediatric inflammatory bowel disease, Transition of care, Chronic disease management
Abbreviations : AG, CD, ECCO, GH, IBD, IBDU, PG, PIBD, PP, UC, UH
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Vol 33 - N° 6
Article 105579- août 2026 Retour au numéro
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