“CRANIOQUALITY study: Quality of life in children with non-syndromic craniosynostosis after surgery” - 05/08/26
Highlights |
• | First study in France assessing QOL by age in NSC-operated children. |
• | QOL indicators show superior outcomes in NSC children vs. normal population. |
• | Utilization of the PedsQL for comprehensive QOL assessment. |
• | Highlights importance of QOL over traditional surgical success metrics. |
• | Advocates for QOL-focused evaluation in craniofacial surgery centers. |
Abstract |
Background |
Few studies have examined the quality of life (QOL) of children undergoing surgery for non-syndromic craniosynostosis (NSC), with no age-specific assessment in France.
Objective |
The CRANIOQUALITY study aimed to assess QOL across different age groups in children treated for non-syndromic craniosynostosis at Clermont-Ferrand University Hospital, France.
Patients and methods |
We evaluated QOL in a cohort of children who underwent surgery for NSC between 2012 and 2020, using the PedsQL™ 4.0 and the PedsQL™ Family Impact Module.
Results |
The study included 37 participants, with 33 PedsQL™ Family Impact Module questionnaires, 32 PedsQL™ 4.0 parent questionnaires, and 20 PedsQL™ 4.0 child questionnaires for analysis. The average family impact score was 90.74%, with mean QOL scores of 87.36% for parents and 87.93% for children. Children reported significantly higher QOL scores than a control group in the physical (p=.0206) and academic (p=.0052) dimensions, while parents noted higher QOL scores in the physical dimension (p=.0340).
Conclusion |
Surgical treatment for NSC in children at Clermont-Ferrand University Hospital did not significantly affect their health-related QOL. QOL indicators can serve as valuable tools for assessing rare disease care quality. Age-specific QOL assessment could provide a more accurate evaluation of surgical treatment's impact on QOL.
Le texte complet de cet article est disponible en PDF.Keywords : Craniosynostosis, Non-syndromic craniosynostoses, PedsQL, Quality of life, Surgery
Abbreviation : IQ, QOL, NSC, PedsQL
Plan
Vol 33 - N° 6
Article 105577- août 2026 Retour au numéro
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