Review of patient registries in dermatology - 18/09/16
Abstract |
Background |
Patient registries are datasets containing information on patients with a particular disease or patients who are undergoing a specific treatment.
Objective |
Our objective was to search for and catalog the types of registries being used in dermatology and investigate their characteristics and uses.
Methods |
We searched Google, the Registry of Patient Registries, Orphanet, and ClinicalTrials.gov to compile a list of dermatology disease registries. We also conducted a literature review on the uses of dermatology registries using PubMed.
Results |
We identified 48 dermatology patient registries, with 23 distinct diseases represented. We also identified 11 registries used for postmarketing surveillance of skin disease.
Limitations |
Our search was limited to registries in English.
Conclusions |
Registries are commonly used for the study of rare dermatologic diseases and for postsurveillance monitoring of systemic therapies in more common dermatologic diseases, such as psoriasis.
Le texte complet de cet article est disponible en PDF.Key words : clinical trial, international, postmarketing surveillance, psoriasis, rare dermatologic disease, research
Plan
| Funding sources: None. |
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| The Center for Dermatology Research is supported by an unrestricted educational grant from Galderma Laboratories, LP. Dr Feldman is a consultant and speaker for Galderma, Stiefel/GlaxoSmithKline, Abbott Labs, Warner Chilcott, Janssen, Amgen, Photomedex, Genentech, BiogenIdec, and Bristol Myers Squibb. Dr Feldman has received grants from Galderma, Astellas, Abbott Labs, Warner Chilcott, Janssen, Amgen, Photomedex, Genentech, BiogenIdec, Coria/Valeant, Pharmaderm, Ortho Pharmaceuticals, Aventis Pharmaceuticals, Roche Dermatology, 3M, Bristol Myers Squibb, Stiefel/GlaxoSmithKline, Novartis, Medicis, Leo, HanAll Pharmaceuticals, Celgene, Basilea, and Anacor, and has received stock options from Photomedex. Dr Feldman is the founder and holds stock in Causa Research. Dr Hill's translational research is funded by Janssen Scientific Affairs, LLC. Ms DiMarco has no conflicts of interest to disclose. |
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| Reprints not available from the authors. |
Vol 75 - N° 4
P. 824-829 - octobre 2016 Retour au numéro
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