Article

Access to the text (HTML) Access to the text (HTML)
PDF Access to the PDF text
Advertising


Access to the full text of this article requires a subscription.
  • If you are a subscriber, please sign in 'My Account' at the top right of the screen.

  • If you want to subscribe to this journal, see our rates

  • You can purchase this item in Pay Per ViewPay per View - FAQ : 30,00 € Taxes included to order
    Pages Iconography Videos Other
    5 0 0 0


Nutrition clinique et métabolisme
Volume 33, n° 4
pages 290-294 (novembre 2019)
Doi : 10.1016/j.nupar.2019.08.001
Received : 8 July 2019 ;  accepted : 9 August 2019
Articles originaux

L’apport des malades à l’amélioration de l’organisation des soins : vers une science participative en nutrition
Patients contributions to the improvements in Healthcare organisations: Toward the development of participatory sciences in nutrition
 

Catherine Tourette-Turgis
 Université des patients-Sorbonne, faculté de médecine, 91, boulevard de l’hôpital, 75013 Paris, France 

Résumé

Cet article retrace l’histoire de la création des collectifs de malades dans plusieurs pathologies. Il illustre différentes modalités d’intervention des malades dans l’organisation des soins en s’attachant à décrire les niveaux d’engagement et les types d’actions conduites par les malades. Il décrit les luttes des malades, les dispositifs législatifs et plusieurs innovations dont l’implantation des patients dans les services de soin dont un exemple dans le syndrome du grêle court.

The full text of this article is available in PDF format.
Abstract

This article traces the history of the creation of patient collectives in several pathologies. It illustrates different ways of intervention of patients in the care organizations while describing the levels of commitment and types of actions conducted by patients. It describes the fights of several patients non profit organizations and some legal reforms with a focus on a French pilot experimentation in the area of short bowel syndrome in which patients are trained to become partner patients in care.

The full text of this article is available in PDF format.

Mots clés : Patient expert, Organisation des soins, Patient partenaire, Syndrome du grêle court

Keywords : Expert -patient, Healthcare organizations, Partner -patient, Short bowel syndrome


1  Loi n̊ 2009-879 du 21 juillet 2009 portant réforme de l’hôpital et relative aux patients, à la santé et aux territoires.
2  Loi n̊ 2016-41 du 26 janvier 2016 de modernisation de notre système de santé.


© 2019  Société francophone nutrition clinique et métabolisme (SFNCM)@@#104156@@
EM-CONSULTE.COM is registrered at the CNIL, déclaration n° 1286925.
As per the Law relating to information storage and personal integrity, you have the right to oppose (art 26 of that law), access (art 34 of that law) and rectify (art 36 of that law) your personal data. You may thus request that your data, should it be inaccurate, incomplete, unclear, outdated, not be used or stored, be corrected, clarified, updated or deleted.
Personal information regarding our website's visitors, including their identity, is confidential.
The owners of this website hereby guarantee to respect the legal confidentiality conditions, applicable in France, and not to disclose this data to third parties.
Close
Article Outline