A consensus approach to wound care in epidermolysis bullosa - 12/10/12
, Irene Lara-Corrales, MD, MSc a, Jemima Mellerio, MD c, Anna Martinez, MD c, Gregory Schultz, MD, PhD d, Robert Burrell, PhD e, Laurie Goodman, BSc, MN f, Patricia Coutts, BSc f, John Wagner, MD g, Upton Allen, MD b, Gary Sibbald, MD, MSc h
Reprint requests: Elena Pope, MD, MSc, Hospital for Sick Children, 555 University Ave, Toronto, Ontario M5G1X8 Canada.Abstract |
Background |
Wound care is the cornerstone of treatment for patients with epidermolysis bullosa (EB); however, there are currently no guidelines to help practitioners care for these patients.
Objectives |
The objective of this study was to generate a list of recommendations that will enable practitioners to better care for patients with EB.
Methods |
An expert panel generated a list of recommendations based on the best evidence available. The recommendations were translated into a survey, and sent to other EB experts to generate consensus using an online-based modified Delphi method. The list was refined and grouped into themes and specific recommendations.
Results |
There were 15 respondents (45% response rate), with significant experience in the EB field (>10 years [67%]). Respondents included physicians (67%), nurses (17%), and allied health professionals (7%). There was more than 85% agreement for all the proposed items. These were further refined and grouped into 5 main themes (assessment and management of factors that impair healing, patient-centered concerns, local wound care, development of an individualized care plan, and organizational support) and 17 specific recommendations.
Limitations |
There is a paucity of scientific evidence with most recommendations based on expert opinion.
Conclusions |
These recommendations will provide practitioners with a framework for caring for these patients. Additional scientific research including effectiveness studies for everyday practice and expert consensus, may further refine these recommendations.
Le texte complet de cet article est disponible en PDF.Key words : consensus, epidermolysis bullosa, guidelines, wound care
Abbreviations used : DEB, DEBRA, EB, EBS, RDEB, SCC
Plan
| Supported in part by an unrestricted educational grant from Molnlycke Health Care. |
|
| Conflicts of interest: None declared. |
Vol 67 - N° 5
P. 904-917 - novembre 2012 Retour au numéro
Article précédent
- Diffuse neonatal hemangiomatosis: An evidence-based review of case reports in the literature
- Zoey R. Glick, Ilona J. Frieden, Maria C. Garzon, Thaddeus W. Mully, Beth A. Drolet
- Oral glycopyrrolate as second-line treatment for primary pediatric hyperhidrosis
- Amy S. Paller, Puja R. Shah, Amanda M. Silverio, Annette Wagner, Sarah L. Chamlin, Anthony J. Mancini
Bienvenue sur EM-consulte, la référence des professionnels de santé.
L’accès au texte intégral de cet article nécessite un abonnement.
Déjà abonné à cette revue ?