Daily life impairments associated with self-reported childhood/adolescent attention-deficit/hyperactivity disorder and experiences of diagnosis and treatment: Results from the European Lifetime Impairment Survey - 14/06/14

Doi : 10.1016/j.eurpsy.2013.10.007

H. Caci ^a,^⁎,^{^{1
These authors both contributed equally.}} , M. Doepfner ^b,^{^{1
These authors both contributed equally.},}^{^{2
Tel.: +49 221 478 6105; fax: +49 221 478 3962.}}, P. Asherson ^c,^{^{3
Tel.: +44 2078 480 078; fax: +44 2078 480 866.}}, R. Donfrancesco ^d,^{^{4
Tel.: +39 3397740368; fax: +39 0641435416.}}, S.V. Faraone ^e,^{^{5
Tel.: +1 315 464 3113; fax: +1 315 849 1839.}}, A. Hervas ^f,^{^{6
Tel.: +34 937365903.}}, M. Fitzgerald ^g,^{^{7
Tel.: +353 086 859 75 47.}}
^a Pediatric Department, Hôpitaux Pédiatriques de Nice, CHU Lenval, 57, avenue de la Californie, 06200 Nice, France
^b Department of Child and Adolescent Psychiatry, University of Cologne, Cologne, Germany
^c Social Genetic and Developmental Psychiatry (SGDP), King's College, Institute of Psychiatry, London, UK
^d Child Neuropsychiatry Department, Sandro Pertini Hospital, Rome, Italy
^e Departments of Psychiatry and of Neuroscience and Physiology, SUNY Upstate Medical University, Syracuse, New York, NY, USA
^f Child and Adolescent Mental Health Unit, University Hospital Mutua of Terrassa, Barcelona, Spain
^g Department of Psychiatry, Trinity College, Dublin, Ireland

^⁎Corresponding author. Tel.: +33 4 92 03 08 71; fax: +33 4 92 03 05 58.

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Abstract

The Lifetime Impairment Survey assessed impairment and symptoms of attention-deficit/hyperactivity disorder (ADHD) in children/adolescents from six European countries. Parents/caregivers of children/adolescents aged<20 years with ADHD (ADHD group; n=535) and without ADHD (control group; n=424) participated in an online survey. History of ADHD diagnosis was self-reported. ADHD and control groups were compared using impairment and symptom scales; higher scores indicate greater impairment. Mean (SD) age at ADHD diagnosis was 7.0 (2.8) years, following consultation of 2.7 (2.6) doctors over 20.4 (23.9) months. Parents/caregivers (64%; 344/535) reported frustration with some aspect of the diagnostic procedure; 74% (222/298) were satisfied with their child's current medication. ADHD had a negative impact on children/adolescents in all aspects of life investigated. The ADHD group had a higher mean (SD) school impairment score (2.7 [0.7]) compared with the control group (2.1 [0.7]; P<0.001) and were more likely to be in the bottom of their class (P<0.001). These data provide insights into impairments associated with ADHD in childhood/adolescence, and identify areas for improvement in its management and treatment.

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Keywords : ADHD, Functional impairment, Treatment, Diagnosis

Plan

Introduction

Subjects and methods

Survey design

Population and subject recruitment

Development of childhood/adolescence impairment scales

Statistical analyses

Results

Participants

Experiences of ADHD management

ADHD impairment and symptom scale scores

General impairment

Impairment at school

Impairment at home

Behaviour and conduct problems

Discussion

Conclusion

Disclosure of interest

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Vol 29 - N° 5

P. 316-323 - juin 2014 Retour au numéro

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Daily life impairments associated with self-reported childhood/adolescent attention-deficit/hyperactivity disorder and experiences of diagnosis and treatment: Results from the European Lifetime Impairment Survey - 14/06/14

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