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Archives de pédiatrie
Volume 12, n° 6
pages 658-660 (juin 2005)
Doi : 10.1016/j.arcped.2005.03.019
Centres de ressources et de compétence de la mucoviscidose et réseaux de soins : la contribution des familles et des associations
Cystic fibrosis centres and networks: role of families and foundations

S. Ravilly , M.C. Wolfrom, A. Lazarevitch, C. Marot, J. Lafond
Vaincre la mucoviscidose, 181, rue de Tolbiac, 75013 Paris, France 

*Auteur correspondant.

Mots clés : Mucoviscidose, Centre spécialisé, Réseaux de soins, Usagers

Keywords : Cystic fibrosis, Specialized center, Patient centered care, Net care

1  Institut de formation professionnelle pour tous les soignants impliqués dans l'éducation du patient.
2  À la différence des professionnels qui ont une vision d'emblée collective des problèmes que pose la mucoviscidose, car ils prennent en charge, dans les CRCM au moins 50 patients, les parents et patients ne possèdent que leur expérience personnelle.

© 2005  Published by Elsevier Masson SAS.
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