Group Concept Mapping Conceptualizes High-Quality Care for Long-Stay Pediatric Intensive Care Unit Patients and Families - 14/12/22
, Lucia D. Wocial, PhD, RN, FAAN, HCE-C 3, Vanessa N. Madrigal, MD, MSCE 4, 5, Michelle M. Moon, DO 6, Cheryl Ramey-Hunt, MSW, LCSW 7, Jennifer K. Walter, MD, PhD, MS 8, 9, 10, 11, Jennifer D. Baird, PhD, MPH, MSW, RN, CPN 12, Jeffrey D. Edwards, MD, MA, MAS 13Abstract |
Objective |
To describe and conceptualize high-quality care for long-stay pediatric intensive care unit (PICU) patients using group concept mapping (GCM).
Study design |
We convened an expert panel to elucidate domains of high-quality care for this growing patient population for which transitory care models fail to meet their needs. Thirty-one healthcare professionals and 7 parents of patients with previous prolonged PICU hospitalizations comprised a diverse, interprofessional multidisciplinary panel. Participants completed the prompt “For PICU patients and families experiencing prolonged lengths of stay, high quality care from the medical team includes ______”, with unlimited free text responses. Responses were synthesized into individual statements, then panelists sorted them by idea similarity and rated them by perceived importance. Statement analysis using GCM software through GroupWisdom generated nonoverlapping clusters representing domains of high-quality care.
Results |
Participants submitted 265 prompt responses representing 313 unique ideas, resulting in 78 final statements for sorting and rating. The resultant cluster map best representing the data contained 8 domains: (1) Family-Centered Care and Shared Decision Making, (2) Humanizing the Patient, (3) Clinician Supports and Resources, (4) Multidisciplinary Coordination of Care, (5) Family Well-Being, (6) Anticipatory Guidance and Care Planning, (7) Communication, and (8) Continuity of Care.
Conclusions |
GCM empowered a panel of healthcare professionals and parents to explicitly describe and conceptualize high-quality care for patients and families experiencing prolonged PICU stays. This information will aid the effort to address shortcomings of transitory PICU care models.
Le texte complet de cet article est disponible en PDF.Keywords : pediatrics, critical care, length of stay, continuity of patient care, critical care outcomes
Abbreviations : GCM, PICU
Plan
| Funded by a grant from the Lucile Packard Foundation for Children's Health, Palo Alto, California (2020-05922). The views presented here are those of the authors and not necessarily those of the Foundation or its directors, officers, or staff. J.W. received support from the National Heart, Lung, and Blood Institute of the National Institutes of Health (K23HL141700). The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health. The research team has submitted an abstract for a panel discussion of this work to the 2022 American Society of Bioethics and Humanities annual conference. As a family participant and in accordance with the Lucile Packard Foundation's policy for such participants, the Foundation provided M.M. with a stipend to compensate her for the time spent on the project. The other authors have no conflicts of interest to declare. |
Vol 252
P. 48 - janvier 2023 Retour au numéro
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