Validation of the French version of the Caregivers’ Priorities and Child Health Index of Life with Disabilities questionnaire - 24/11/23

Doi : 10.1016/j.otsr.2023.103753

Audrey Angelliaume ^a,⁎ , Luke Harper ^a, Aurore Bouty ^b, Cécile Bouteiller ^c, Brigitte Deleplanque ^c, Magaly Ravel ^c, Malo Le Hanneur ^d, Unni G. Narayanan ^e, Cyril Ferdynus ^f, Clémence Pfirrmann ^a
^a Department of Pediatric Surgery, Pellegrin University Hospital, place Amélie-Raba-Léon, 33076 Bordeaux, France
^b Department of Pediatric Surgery, The Royal Children's Hospital, 50, Flemington Road, Parkville, Victoria 3052, Australia
^c Department of Children Physical and Rehabilitation Medicine, Pellegrin University Hospital, place Amélie-Raba-Léon, 33076 Bordeaux, France
^d Department of Pediatric Orthopaedics, Trousseau University Hospital, 26, avenue du Dr-Arnold-Netter, 75012 Paris, France
^e Department of Orthopaedic Surgery and Child Health Evaluative Science, Hospital of Sick Children, Toronto, Canada
^f Methodological Support Unit, University Hospital, allée des Topazes, 97400 Saint-Denis, Reunion Island, France

^⁎Corresponding author.

Sous presse. Épreuves corrigées par l'auteur. Disponible en ligne depuis le Friday 24 November 2023

Abstract

Introduction

The Caregivers’ Priorities and Child Health Index of Life with Disabilities (CPCHILD) is a questionnaire that measures the health-related quality of life (HRQL) of children with cerebral palsy (CP). Though measuring HRQL is challenging in these children, it is a valuable help for medical decision-making. There is no questionnaire to assess HRQL in French-speaking children with severe CP.

Objective

To translate and adapt transculturally the CPCHILD questionnaire into French (CPCHILD-FV).

Material and methods

The CPCHILD was translated from English into French by forward and backward translation by independents translators. The questionnaire was then tested on 32 caregivers of patients with CP classified as GMFCS IV or V, remarks of caregivers were analyzed by an expert committee and, if necessary, modifications were performed. Internal consistency of the CPCHILD-FV was assessed using a sample of 32 parents or caregivers and test-retest reliability was assessed on a random sample of 10 patients.

Results

The translation and transcultural process resulted in a French version of the CPCHILD. Some items of the CPCHILD required careful discussion to ensure that items had the same meaning as in the original. Internal consistencies were over 0.70 for each domain except for health, and 0.97 for the total scores. The ICC for the test-retest reliability of the CHILD-FV total score was 0.98 (95% CI: 0.93–0.99) and ranged from 0.59 to 0.99 for the domains.

Conclusion

The translation and cross-cultural adaptation of the CPCHILD questionnaire provides a French version than can measure the HRQL of children with severe CP.