Pediatric Palliative Care - 02/08/11

Doi : 10.1016/j.pop.2011.03.011

Karen Moody, MD, MS ^a,^⁎ , Linda Siegel, MD ^b, Kathryn Scharbach, MD ^c, Leslie Cunningham, PhD ^a, Rabbi Mollie Cantor, BCC ^d
^a Division of Pediatric Hematology/Oncology, Albert Einstein College of Medicine, Children’s Hospital at Montefiore, 3415 Bainbridge Avenue, 111 East 210th Street, Rosenthal 3, Bronx, NY 10463, USA
^b Division of Pediatric Critical Care, Albert Einstein College of Medicine, Children’s Hospital at Montefiore, 3415 Bainbridge Avenue, 111 East 210th Street, Rosenthal 4, Bronx, NY 10463, USA
^c Division of Social Pediatrics, Albert Einstein College of Medicine, Children’s Hospital at Montefiore, 3415 Bainbridge Avenue, 111 East 210th Street, Rosenthal 4, Bronx, NY 10463, USA
^d Center for Pastoral Education, Jewish Theological Seminary, 3080 Broadway, New York, NY 10027, USA

Corresponding author.

Résumé

Progress in pediatric palliative care has gained momentum, but there remain significant barriers to the appropriate provision of palliative care to ill and dying children, including the lack of properly trained health care professionals, resources to finance such care, and scientific research, as well as a continued cultural denial of death in children. This article reviews the epidemiology of pediatric palliative care, special communication concerns, decision making, ethical and legal considerations, symptom assessment and management, psychosocial issues, provision of care across settings, end-of-life care, and bereavement. Educational and supportive resources for health care practitioners and families, respectively, are included.

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Keywords : Palliative care, Pediatric palliative care, Advanced care planning, End-of-life care