Implementing a Specialty Electronic Medical Record to Document a Life-Course Developmental Model and Facilitate Clinical Interventions in Spina Bifida Clinics - 04/08/11

Doi : 10.1016/j.pcl.2010.07.015

Andrea D. Fairman, MOT, OTR/L, CPRP ^a,^⁎ , Judy K. Thibadeau, RN, MN ^b, Brad E. Dicianno, MD ^c,^d, Bambang Parmanto, PhD ^e
^a Department of Rehabilitation Science and Technology, University of Pittsburgh, School of Health and Rehabilitation Sciences, Forbes Tower, Suite 5044, 3600 Forbes Avenue, Pittsburgh, PA 15260, USA
^b Division of Human Development and Disability, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, 1600 Clifton Road, Mailstop E-88, Atlanta, GA 30033, USA
^c Department of Veterans Affairs, Human Engineering Research Laboratories (HERL), VA Pittsburgh Healthcare System, 7180 Highland Drive, 151R-1, Pittsburgh, PA 15206, USA
^d Department of Physical Medicine and Rehabilitation, University of Pittsburgh Medical Center (UPMC), Kaufmann Medical Building, Suite 202, 3471 5th Avenue, Pittsburgh, PA 15213, USA
^e Department of Health Information Management, University of Pittsburgh School of Health and Rehabilitation Sciences, 6026 Forbes Tower, 3600 Forbes Avenue, Pittsburgh, PA 15260, USA

Corresponding author.

Résumé

This article describes the utility of a spina bifida-specific electronic medical record (SB EMR). Standardization and pooling of data through the SB EMR will facilitate development of increased knowledge for advancing interventions for SB treatment, rehabilitation, and support. Integration with a Web-based transition tool will enhance the efficiency and efficacy of interventions delivered by clinicians. The SB EMR may also be used by SB clinic staff to manage and monitor the developmental course SB through childhood and the adolescent years. Further, implementation of the SB EMR in conjunction with the life-course model will assist in the transition of young persons with SB to adult roles.

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Keywords : Electronic medical record, Spina bifida, Developmental model, Transition

Plan

The National Spina Bifida Program

Web-based SB EMR

EMR usage of United States spina bifida clinics—a brief survey

Implementation of the SB EMR

Future directions

	Statement of financial support: This work was supported by the National Spina Bifida Program, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia.
	The authors have nothing to disclose. The findings and conclusions in this report are those of the authors and do not necessarily represent the official position of the Centers for Disease Control and Prevention.

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Vol 57 - N° 4

P. 959-971 - août 2010 Retour au numéro

Article précédent

Using the Spina Bifida Life Course Model in Clinical Practice: An Interdisciplinary Approach
Brad E. Dicianno, Andrea D. Fairman, Shannon B. Juengst, Patricia G. Braun, T. Andrew Zabel

| Article suivant

Physiatrists and Developmental Pediatricians Working Together to Improve Outcomes in Children with Spina Bifida
Mark E. Swanson, Brad E. Dicianno

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Implementing a Specialty Electronic Medical Record to Document a Life-Course Developmental Model and Facilitate Clinical Interventions in Spina Bifida Clinics - 04/08/11

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