Challenges in Implementing a Successful Newborn Cystic Fibrosis Screening Program - 21/08/11
, Richard Parad, MD, MPH, Robert Gerstle, MD, Brian P. O’Sullivan, MD, Henry L. Dorkin, MD, Mark Dovey, MD, Kenan Haver, MD, Tom Martin, MD, Roger B. Eaton, PhD
Reprint requests: Anne Marie Comeau, PhD, New England Newborn Screening Program of University of Massachusetts Medical School, 305 South St, Jamaica Plain, MA 02130.Abstract |
Objective |
To identify necessary components of a successful cystic fibrosis (CF) newborn screening (NBS) program.
Study design |
The approach to CF NBS used by the Massachusetts NBS program was examined.
Results |
Several key components were identified that should be addressed when a state has made the decision to screen, and well in advance of actual implementation. These components include (1) inclusion of CF center directors in the development process; (2) logistics of choosing a screening algorithm relative to practices in place and community wishes; (3) projections of medical service needs from specific algorithms; (4) identification of critical reporting components; (5) identification of critical follow-up components; and (6) recognition of educational needs.
Conclusions |
Careful examination of a wide variety of issues is needed to ensure optimal implementation of NBS for CF.
Le texte complet de cet article est disponible en PDF.Mots-clés : CF, IRT, NBS, PCP
Plan
| Supported in part by Program Funds of the New England Newborn Screening Program of University of Massachusetts Medical School and in part by the Health Resource and Services Administration grant no. 5 H46 MC 00198-02. |
Vol 147 - N° 3S
P. S89-S93 - septembre 2005 Retour au numéro
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