Characterizing informational needs and information seeking behavior of patients with breast cancer - 12/12/23

Doi : 10.1016/j.amjsurg.2023.09.047

Abigail Ludwigson ^a,^⁎ , Victoria Huynh ^b, Sudheer Vemuru ^b, Karina Romandetti ^b, Christine Fisher ^c, Helen L. Coons ^d, Jessica Pettigrew ^e, Karen Hampanda ^e, Christodoulos Kaoutzanis ^f, Gretchen Ahrendt ^b, Anosheh Afghahi ^g, Camille Stewart ^b, Sarah Tevis ^b,^{^{1
AWS Member.}}
^a University of Colorado School of Medicine, 13001 E 17th Pl, Aurora, CO, USA
^b Department of Surgery, University of Colorado School of Medicine, Aurora, CO, USA
^c Department of Radiation Oncology, University of Colorado School of Medicine, Aurora, CO, USA
^d Department of Psychiatry, University of Colorado School of Medicine, Aurora, CO, USA
^e Department of Obstetrics and Gynecology, University of Colorado School of Medicine, Aurora, CO, USA
^f Division of Plastic and Reconstructive Surgery, Department of Surgery, University of Colorado School of Medicine, Aurora, CO, USA
^g Department of Medicine, University of Colorado School of Medicine, Aurora, CO, USA

^∗Corresponding author. 13001 E 17th Pl, Aurora, CO, 80045, USA.13001 E 17th PlAuroraCO80045USA

Abstract

Background

Appropriate information may facilitate adjustment to cancer diagnoses. Our study aims to characterize informational satisfaction in breast cancer patients and assess resources used by patients to gain information.

Methods

Newly diagnosed Stage 0-III breast cancer patients seen at an academic medical center between May and September 2020 received questionnaires assessing information satisfaction. Patients indicated resources used to obtain information along with satisfaction with information received in various topics. A subset of questionnaire respondents completed semi-structured interviews.

Results

Fifty-two (35 %) patients completed the questionnaire. Patients received information from physicians (96 %), the internet (81 %), nurses (79 %), and fellow breast cancer patients (54 %). Interview participants preferred receiving information from providers when making medical decisions but found patient forums and social media to be important adjuncts for receiving information.

Conclusion

Patients are satisfied with information received about diagnosis and treatment, but finances, sexual health, and fertility are less frequently discussed.

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Highlights

•	Patients most commonly receive information from their providers and the internet.
•	Patients desire personalized information about their cancer and its treatment.
•	Least discussed topics include finances, sexual health, and fertility.

Le texte complet de cet article est disponible en PDF.

Keywords : Breast cancer, Resources, Information seeking, Patient satisfaction

Plan

Semi-structured interviews

Information topics

Preferred information sources

Volume of information during initial consultation

Discussion

Conclusions

Statements and Declarations

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Vol 227

P. 100-105 - janvier 2024 Retour au numéro

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Characterizing informational needs and information seeking behavior of patients with breast cancer - 12/12/23

Abstract

Background

Methods

Results

Conclusion

Highlights

Plan

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