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Provider Perceptions on Bereavement Following Newborn Death: A Qualitative Study from Ethiopia and Ghana - 14/03/23

Doi : 10.1016/j.jpeds.2022.10.011 
Sharla Rent, MD 1, , Ashura Bakari, MD 2, Solomie Deribessa, MD 3, Mahlet Abayneh, MD 3, Aisa Shayo, MD 4, Yema Bockarie, MD 5, Cheryl Moyer, PhD, MPH 6, Stephanie Kukora, MD 7
1 Department of Pediatrics, Division of Neonatal-Perinatal Medicine, Duke School of Medicine, Durham, NC 
2 Department of Pediatrics, Suntreso Government Hospital, Ghana Health Service, Kumasi, Ghana 
3 Department of Pediatrics and Child Health, St.Paul's Hospital Millennium Medical College, Addis Ababa, Ethiopia 
4 Department of Pediatrics, Kilimanjaro Christian Medical Centre, Moshi, Tanzania 
5 Cape Coast Teaching Hospital, Cape Coast, Ghana 
6 Departments of Learning Health Sciences and Obstetrics and Gynecology, Michigan Medicine, University of Michigan, Ann Arbor, MI 
7 Division of Neonatal Perinatal Medicine, Department of Pediatrics, Michigan Medicine, University of Michigan, Ann Arbor, MI 

Reprint requests: Sharla Rent, MD, Division of Neonatal-Perinatal Medicine, Department of Pediatrics, Duke University School of Medicine 2400 Pratt St, 8th floor, Durham, NC 27705Division of Neonatal-Perinatal MedicineDepartment of PediatricsDuke University School of Medicine2400 Pratt St, 8th floorDurhamNC27705

Abstract

Objective

The objective of this study was to explore how clinicians in low- and middle-income countries engage and support parents following newborn death.

Study design

Qualitative interviews of 40 neonatal clinicians with diverse training were conducted in Addis Ababa, Ethiopia, and Kumasi, Ghana. Transcribed interviews were analyzed and coded through the constant comparative method.

Results

Three discrete themes around bereavement communication emerged. (1) Concern for the degree of grief experienced by mothers and apprehension to further contribute to it. This led to modified communication to shield her from emotional trauma. (2) Acknowledgment of cultural factors impacting neonatal loss. Clinicians reported that loss of a newborn is viewed differently than loss of an older child and is associated with a diminished degree of public grief; however, despite cultural expectations dictating private grief, interview subjects noted that mothers do suffer emotional pain when a newborn dies. (3) Barriers impeding communication and psychosocial support for families, often relating to language differences and resource limitations.

Conclusions

Neonatal mortality remains the leading global cause of mortality under age 5, with the majority of these deaths occurring in low- and middle-income countries, yet scant literature exists on approaches to communication around end-of-life and bereavement care for neonates in these settings. We found that medical providers in Ghana and Ethiopia described structural and cultural challenges that they navigate following the death of a newborn when communicating and supporting bereaved parents.

Il testo completo di questo articolo è disponibile in PDF.

Keywords : newborn health, stillbirth, global health, Ghana, Ethiopia, Africa, neonatal ethics, palliative care, bereavement

Abbreviations : CPAP, HIC, KATH, NICU, SGH, SPHMMC


Mappa


 Ethics Approval: Ethical clearance was obtained from the institutional review boards at the University of Michigan (HUM00139420) St. Paul's Hospital Millennium Medical College (REF: P.M. 23/164) and Komfo Anokye Teaching Hospital (REF: CHRPE/AP/193/18). Each participant was taken through a verbal consent process, which included explicit permission to audio-record the interview.
 Funded by the University of Michigan Global REACH Partnership Development Grant. The authors declare no conflicts of interest.


© 2022  Elsevier Inc. Tutti i diritti riservati.
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P. 33 - marzo 2023 Ritorno al numero
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